About Us.
“It’s a good day for a good day.”
— Paul Apap
Our Story.
December of 2009 was the first time Paul Apap realized something strange was happening to his muscles. He attended a Christmas party and had trouble holding onto a plate of food. He continued to notice signs of slowly weakening muscles in his arms and began to visit various doctors looking for an explanation. After many months of testing, he was diagnosed with ALS, also known as Lou Gehrig’s Disease, and was given between two and five years to live. Paul slowly began to lose all the muscles in his body starting with his hands and arms, moving to his legs, until eventually it became difficult to even hold his own neck up. Fortunately for his family and friends, he did not lose his ability to talk, although his voice became weaker and weaker as the disease progressed. Paul’s incredible positivity, his sense of humor, his love for his family and friends, and his faith were truly something to behold. Paul lived for ten years after he was diagnosed, truly defying the odds. Paul inspired every single person he met. Knowing the emotional and financial burden of ALS, we established this foundation in Paul’s memory to help other families battling this disease.
Please consider supporting our work - thank you!